Wednesday, 30 May 2012

Ending treatment

We took Ben to Birmingham Childrens Hospital the other day to see the Craniofacial surgeons.  We were wanted to check that the asymmetry hadn't affected the formation of his jaw etc...

We saw the Registrar and then were asked to go through into a room of 10 people!!  We didn't realise we were walking into a multi-disciplinary team meeting!  Good job Daddy (ortho surgeon) was there!!

They talked technical to Daddy so Mummy just listened but basically they told us that we had to now take the helmet off.  The reasons being that, it is pushing his left cheekbone in and starting to cause more asymmetry problems around the eye and also that it was creating red pressure marks all across the bottom of his skull and we now need to let that grow out naturally.

They measured Bens head three times and they got measurements of between 3 and 5mm each time and we are satisfied that the helmet has reached the end of its usefulness in terms of correcting the shape.

We asked if the plagio could return and it is one of those questions that can't really be answered.  It is unlikely that it will but we have gone back to vigorous repositioning.  However Ben spends much less time lying down now he is older so the risk isn't as high.

We will return to the hospital in 6 months time to re-evaluate the cheek bone situation and to look at the overall shape of his head.

So Ben has been enjoying feeling fresh air on his head and the red marks have all reduced quite considerably already. We had to go and do a spot of sunhat buying though!!




No comments:

Post a Comment